Hey! So Glad You're Here.

We're so glad that you made it onto our website! This is an organization that aims to serve children and teens that have been diagnosed with rare diseases. Our goal is to make sure that children and teens feel educated about their disease(s) and how to manage them, are empowered to know what their options are regarding treatment, and have a community that will support them along the way. We like to do this in a fun and engaging way, and like to incorporate games, art, and movement!

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We seek to support parents as well, as they navigate how to support their children through this unplanned and unexpected diagnosis, so that they can feel less alone. You are sure to leave our space with more information and community.